ENDOMETRIOSIS ASSOCIATION offers education and information for women who have endometriosis. Can also provide information about where to go for help with Endometriosis Surgery or Adenomyosis Disease/Surgery.
Offers referrals to services that are available statewide. Educational materials are available. Call for locations of support groups. Customized Epilepsy education programs are available for a variety of audiences, which includes seizure recognition and first aid certification, seizure training for school personnel and seizure training for school n...
Epilepsy education through films, slide presentations and literature, and referrals to agencies.
Information and public awareness regarding Glycogen Storage Disease (GSD).College scholarships to affected young adults.Annual meeting where families and medical professionals can connect.
Information resource to headache sufferers, their families, and the health care providers who treat them. Information on types of headaches as well as a physician finder.Support community via chat rooms and blogs.Promotes research into potential headache causes and treatments.Public education regarding headaches.
Sponsors financial aid for cardiovascular research, provides public materials on cardiovascular disease and stroke, assists in health education programs of schools and other organizations, provides technical literature and education to physicians and provides CPR training and materials.Annual events include: Heart Walk, Heart Ball, and Go Red for W...
Health research, public education, professional education, and speakers' bureau on heart-related diseases.
Heart healthy lifestyle education to the community, schools, and work sites. Education of healthcare professionals about the prevention and treatment of heart disease and stroke. Funding for heart disease and stroke research. Annual events include Go Red for Women, Heart Walk, and Heart Ball Gala.
Education, support, and referrals regarding hemophilia, von Willebrand disease, and other bleeding disorders.Newsletter sent quarterly and e-newsletter sent monthly via email.Camping program for children with bleeding disorders and their siblings.Annual statewide educational conference.Scholarships for students attending college or trade schools.Em...
Information pertaining to all aspects of Huntington's Disease.Referrals to local chapters, local support groups, chapter social workers, physicians, nursing home, and a variety of other resources via local representatives.
Provides community to women and men dealing with infertility, connecting them with others who can help, empowering them to find resolution, and advocating for access to all family building options.Peer led support groups are hosted by a volunteer and are composed of a varying number of people. Groups are often "drop in" in nature and last about tw...
Provides direct financial assistance for people on dialysis and people who have received a kidney transplant within 5 years supported by comprehensive educational programs, clinical research, and community service.Outreach and educational programs.Health insurance program.Help line.Renegal Patient Assistance Program, RPAP.
Information and referral.Public information and education concerning kidney and urologic diseases and organ and tissue donation, including an educational program for students in grades 3-6, 'Kidneys and Health Education Program'.Professional education.Patient services.KEDS - Kidney Early Detection Screening for those at risk.
NATIONAL KIDNEY FOUNDATION OF IOWA is a healthcare non-profit offering education and services to those with or at risk for kidney disease. This education and programming includes; patient and professional services, public, patient and professional education, research and other programming relating to kidney disease, transplantation or general kidne...
Information, education, and research on blood cancers.Support available through group meetings and weekly online chats.
Information concerning Leukemia, Lymphoma, Myeloma and other blood related cancers for professionals and the general public. Patient services, science and research and advocacy information. Free education, literature, and video and audio tapes.Transportation assistance program and co-pay assistance program.Telephone support group and traditional su...
Provides education and support services to people affected by lupus. Collaborates with experts to provide information, programs, and resources to help people navigate every step of the journey with lupus.Strategies to Embrace Living with Lupus Fearlessly (SELF) is a free online self-management program designed to help people with lupus live their ...
Provides information for potential, current or family members of Lyme disease patients. Information available for health care providers too.SUPPORT GROUPS in Des Moines, Cedar Rapids, Sioux City, Council Bluffs, Grinnell (Jasper County) and Davenport, Bremer County (Waverly).
Provides information, peer support and educational materials for those affected by Marfan Syndrome Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome (VEDS), and other genetic aortic and vascular conditions. The Foundation also supports research on these conditions all over the world through our research grant program and GenTAC, our research ar...
Professionals connect patients to the information, resources and support needed to move life forward. Help navigate the challenges of MS unique to each situation, providing:--Information and education to help people with MS and their support teams powerfully advocate for what patients need, when and how they need it--Emotional support resources for...
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